Channel 4 (UK) Documentaries

Channel 4 (UK) Documentaries

The Boy Whose Skin Fell Off (2004x22)


Date de diffusion: Mar 25, 2004

A film about Jonny Kennedy, who had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

  • Première: Déc 1982
  • Épisodes: 1393
  • Abonnés: 14
  • En cours
  • Channel 4
  • Daily à 20