My Shocking Story

Giant Head Sain Mumtaz has the most extraordinary head – but what is causing its extreme growth and how Sain might be treated is a total mystery. Sain was told as a child that he suffered from Proteus syndrome – the same condition as Joseph Merrick, the original Elephant Man. But Proteus is renowned for affecting only one side of the body, to the trained eye the symmetrical deformity of Sain’s face and skull suggests he is probably suffering from a different condition– but which of the many rare congenital dysmorphologies could it be? Sain’s family sought no medical intervention for their son throughout his childhood, but now Sain is 18, and he wants to know what is wrong with him, and whether anything might be done to improve his day-to-day life. He has hopes for his future, one day he would like to run a rickshaw business, but he sees no place for marriage in his life. He believes that he is the way he is because God has cursed him. It’s for him and him alone to bear the weight of the curse.