De Sjældne Danskere

A good life despite a rare disease (2x1)

Uitzenddatum: Sep 03, 2019

It's time again to meet some very unique children. Some we know and others are new. What they all have in common is that they fight to get the best out of life despite their rare disease. Piet is back, and together with his friend Hjalte, they set new standards for being football fans. Also meet the charming four-year-old Nalina, who suffers from Stickler syndrome. She is to be an older sister, and the question is whether the younger brother is also at risk of getting the hereditary disease - and this puts the parents in a dilemma. Rebekka, 13, has Morquio syndrome and struggles with the prospect of a teenage life without being able to do the same as her peers.